Monday, May 11, 2009

- Day Five in Helmet Monday 11th May, 2009 | 7:57 am

An update on my son Jonathan:

Jonathan completed physical therapy for torticollis in April and saw some improvement in his head shape.  From March 3 to April 22, his cephalic ratio decreased from 92.3% to 87.1%.  His asymmetry remained 16mm, so we decided to go ahead with a helmet.

We've had quite the time getting an appointment with a neurosurgeon -- even in a big city like Houston.  One specialist's wait was until September!  Our pediatrician finally wrote the script herself, and Jonathan was fitted for a STARband last week.  We received the helmet on Thursday, and Jonathan has been progressing on the wearing schedule.

Last night was his first time to wear it through the night, and he did so well -- he didn't wake up at all.  I really hope last night wasn't a fluke.  *crossing fingers*

We've been out to IHOP and a mall while wearing the helmet -- no snide comments yet.  We've had quite a few looks and even a few pointing fingers, though.

Otherwise, I know Jonathan is unaffected, and I'm fairly okay, too.  Decorating with stickers really did help the helmet seems less medical.  And after seeing him wear it for increasing amounts of time, his head seems so small and weird and naked without it.  Strange, huh?
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Monday, April 27, 2009

- Band Fitting Monday 27th Apr, 2009 | 12:50 pm

With there not being a whole lot going on here. I'm hoping my updates on Andy's progress and the steps of getting a band will help someone else out there.

Anyways. I was really nervous before the fitting. Worried about how my little boy would look with a band, what other people would think, how I would feel about taking him out and about. I think part of the reason I have these fears is I think I've seen 2 other kids my entire life with a band. The first time I had no clue what it was for and thought the kid had some head injury or something. The 2nd time it was after I knew and that kid still looked cute but really they just don't appear to be common at all.

We got to the appointment. They showed me how to put on the helmet, and then we waiting for 15 minutes to see how the fit was and they filled out my FMLA paperwork during that time. They came back and checked Andy, went over the red spots on his head and took the helmet to shave off a little bit for a better fit. Came back and checked to see how much the red spots had faded and had me put the helmet on, went over the care of the helmet and steps for the next week. We scheduled his next appointment and were off. Oddly enough I left and had no more worries about how he looked. It was like I'd had that weight lifted off my shoulders. I mean he's still my cute little boy and I love him regardless of how he looks but really it doesn't look that bad. While we were out and about the next 1.5 days we still got as many or more comments on how cute he was. I even heard a few comments about oh look that baby has a band like so and so, or there's what a band looks like. Obviously others have a clue what they are and my baby is still just as cute as always.

The only downside in the 3 days or so with the band is when Andy falls asleep in my arms having the band against my arms can be a bit uncomfortable but usually a little shifting around allows me to find a comfortable position so nothing too horrible. I swear I think Andy likes the helmet cause everytime we put it on he smiles.

Next step:
Decorating the helmet! I'm going to take a stab at this sometime this week. We are painting it a tannish color and will then paint some trees and grass on it and put his safari animal stickers on it. Hopefully I can do a decent job. I'll get some pictures of the process and go over what we used and pros and cons of it.
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Monday, January 9, 2006

- Some Pics Monday 9th Jan, 2006 | 3:28 pm

I finally got around to uploading some picture CDs I had from my camera, which included a few pictures of my boy in his DOC band, so I thought I'd share them :) It's been a year and a half since he's graduated from the band. I've kind of missed having him in his band, even undecorated, I thought it looked really cute, although I definitely do NOT miss how much it hurt when he'd accidentally headbutt us with that thing on!

Onto the pictures..Collapse )
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Wednesday, October 19, 2005

Wednesday 19th Oct, 2005 | 2:16 am

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Sunday, May 29, 2005

Sunday 29th May, 2005 | 12:56 pm

Community is up and running now :) The top graphic will soon change colors to better match the color scheme of the layout, and a few promotional banners will be made to help spread the word, but that can be done later; the bulk of it is finished. Feel free to fill out the applications that can be found on the community info page! I guess I'll be the first one to start.

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